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Just diagnosed: Metastatic NETs. Treatment?
Neuroendocrine Tumors (NETs) | Last Active: May 13, 2023 | Replies (53)Comment receiving replies
Oh it is so frustrating, isn't it? Someone told me that I should feel very comfortable with my oncologist because after all, I am literally putting my life into his hands, and that if I don't feel comfortable I should have no qualms about finding someone who I trust. I am so happy to hear that you have made the move and found a better match for you, and I hope you feel 100 times better and more confident in your care than before!
Thank you for your advice...it's good to have someone like you to reach out to. I hope you continue to do well with your treatment. Keep me informed, OK?
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@helloitsme, I am in the process of trying to schedule a scan (Gallium 68) as my last one was 14 months ago. It’s a bit stressful as it’s been so long but I’m just trying to focus on the fact I feel good (an hour at the gym today, 3 miles on the treadmill yesterday). Fingers crossed on this.
As for moving doctors, I mailed a letter to my former doctor today saying I was notifying him I would no longer be seeking treatment there, thanked him for his help and support over the last 4 years, and that I know he and the staff have very challenging jobs. Short and to the point and I felt better for having done it. No reason to go into my grievances, but just to move on.
So, I know there’s likely going to be a next step in my treatment, just don’t know yet what it’ll be. It’ll be a new “challenge”. But I viewed hitting 3 miles on the treadmill a challenge, and I’ve met it. Hum, guess I need to set a new challenge there.
Keep us informed please.