← Return to Just diagnosed: Metastatic NETs. Treatment?

Discussion

Just diagnosed: Metastatic NETs. Treatment?

Neuroendocrine Tumors (NETs) | Last Active: May 13, 2023 | Replies (53)
Comment receiving replies
@patrick031621

I hope my comments helped. Good luck. You have nothing to lose by trying dietary restrictions. I might mention that I started out initially with three liver tumors and my numbers in my blood work were horrible. Somewhere along the line one of them disappeared and the others just sort of happily lay there. I am in great shape on my blood numbers now. They have never found the primary tumor but initially I was told I had three to five years. God be with you on this. Ax my oncologist said to me two days ago, "You have been truly blessed."

Jump to this post

Replies to "I hope my comments helped. Good luck. You have nothing to lose by trying dietary restrictions...."
pavlina60 | @pavlina60 | May 8, 2023

@patrick031621 - I have similar conditions - surgery to remove huge pancreatic NET, metastastized to liver. I am on my third Lanreotide injection today. Could you share your specific diet, please? I am eating mostly plant protein ( lentils, beans, chickpes). Blueberries, apples, pears, a little bit green salad and peeled cucumber slices. Fish and chicken twice a week.
Thank you! And God be with you and us all!

VIEW AND REPLY
Teresa, Volunteer Mentor | @hopeful33250 | May 8, 2023

You have really found a way to successfully live with NETs, @patrick031621. I appreciate you sharing the many ways you have adjusted your lifestyle to deal with this disorder. You have displayed an attitude that reflects the ability to adjust to new circumstances.

As my first surgery for NETs was in 2003, I am a 20-year survivor. It has not been easy, and my lifestyle (especially eating) has needed adjustments to accommodate for a slow digestive process as well as diminished energy level. Flexibility is a key and the ability to enjoy life in spite of changes is important.

It is challenging at first, but with time (and the ability to change) life can be better. Congratulations on the good results you have had with your treatment. I agree with your oncologist that you have been blessed.

VIEW AND REPLY