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Adenocarcinoma - newly diagnosed

Lung Cancer | Last Active: Jul 17, 2023 | Replies (164)

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@lls8000

@kkckkjm, Thanks for the reminder for others that may read this in the future! You note has prompted some good discussion.
While others have mentioned that the biomarker/molecular testing is 'standard of care' in the USA, many rural clinics and insurance companies are lagging behind. The testing really is lifesaving, my own life included. My original insurance company also denied my claim. The biomarker company (FoundationOne) fought for payment on my behalf. Many of us on targeted therapies will experience progression of our cancer in the future, at that time biomarker testing should be performed again in order to determine if the cancer has mutated into another form with a targetable mutation. Unfortunately, our fight for insurance payments may not be over.
We're starting to see state-by-state legislation that requires insurance companies to pay for these tests, but progress is slower than any of us would like, and a federal solution would be preferred. Here's where we stand: https://www.fightcancer.org/what-we-do/access-biomarker-testing

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Replies to "@kkckkjm, Thanks for the reminder for others that may read this in the future! You note..."

Thank you Lisa for the support and especially the link to "fightcancer...". It appears my state AZ has enacted some type of legislation to cover this expense. I will investigate further. In the meantime, my 2 appeals were denied by insurance and I was told I'm out of options with them. Armed with the information you provided, I will see where my next level of appeal can be sent. Targeted treatment just seems to make SO much sense and quite possibly save the insurance companies some money. Boggles the mind... Thanks again!

As a follow up to biomarker testing legislation - I checked the law requiring it be covered by insurance was enacted in AZ in January 2023. My procedures were done in 2022 (June and October). But that is progress and I hope other states will follow.