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Severe scoliosis

Spine Health | Last Active: Feb 1 11:39am | Replies (20)

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@neesie33177

Hey there! My name is Denise, I am 46 years old, and I was recently diagnosed with severe scoliosis. They want to do several surgeries on my back to basically reconstruct my spine. When I was younger I was diagnosed with slight scoliosis by my nurse in elementary school. So my parents never followed through with it and I had no idea that the back pain I have suffered through was even related to that. However, after having a severe bowel obstruction which left me in the hospital for 3 weeks they had to do a CAT scan to make sure everything was okay. Well because of this that's how they discovered it because they could see through to my back and my spine. I have to be honest, the reason I'm writing any of this is because I am absolutely terrified!! I mean I have to get rods in my back and they have to take out several of my discs which are severely degenerative and to top that off if I don't get the surgery, there is a chance that I could become paralyzed. The last disc is basically becoming unattached to my spine. I can't even talk about this without becoming extremely emotional. Has anyone going through anything like this to get over me any advice? I'd really appreciate it, thank you!

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Replies to "Hey there! My name is Denise, I am 46 years old, and I was recently diagnosed..."

Hi Denise,

I recently had spine fusion for my scoliosis. My surgery was done over two days as my curves were larger than most and I also needed a vertebrae removed. Make sure you find a doctor you feel comfortable with. If you go to Mayo, they do a really good job matching your case with the best doctor. I'm currently in week 6 post-op. The first month is not fun, but as my doctor told me if I didn't get surgery It would definitely shorten my life span. This was because it affects the location and function of the other organs. Start with finding a good surgeon and discuss the pros and cons. It can be scary. You'd be crazy if you weren't a bit scared. If you do get surgery, make sure you can be in a place where you can have help with your daily needs. Definitely want to make sure this is fully arranged before hand. If you have any questions feel free to ask. Hope for the best on your journey! You're not alone!