Anyone had pelvic exenteration surgery for cervical cancer?

Posted by afowler876 @afowler876, May 4, 2023

Has anyone had a pelvic exenteration surgery for cervical cancer? If so was the recovery hard.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Helen, Volunteer Mentor | @naturegirl5 | May 4, 2023

@afowler876 Is this a procedure recommended by your oncology surgeon for yourself or for a loved one? I’d like to offer my concern for being in the position to make such a huge decision as this.

Here is a video of Dr. Amanika Kumar from Mayo Clinic explaining what pelvic extenteration is and the reasons it is done. Dr. Kumar was my GYNOncology surgeon for a hysterectomy when I was diagnosed with endometrial cancer.

— what is pelvic extenteration
https://medprofvideos.mayoclinic.org/videos/what-is-a-pelvic-exenteration
—Pelvic ententeration
https://www.mayoclinic.org/medical-professionals/obstetrics-gynecology/news/pelvic-exenteration-radical-but-positive-for-carefully-selected-patients-with-pelvic-cancer/mac-20505403

afowler876 | @afowler876 | May 4, 2023

In reply to @naturegirl5 "@afowler876 Is this a procedure recommended by your oncology surgeon for yourself or for a loved..." + (show)

My daughter was diagnosed with stage 3b cervical cancer. Already completed chemo/radiation, she is almost 1 year out. Recent CT shows soft tissue mass, biopsy done, but Dr said he would do hysterectomy it would just be a pelvic exenteration which to me is to agressive since her cancer is localized at this point. Doesnt really agree with a radical hysterectomy due to not being able to get clear margins.

Helen, Volunteer Mentor | @naturegirl5 | May 4, 2023

In reply to @afowler876 "My daughter was diagnosed with stage 3b cervical cancer. Already completed chemo/radiation, she is almost 1..." + (show)

@afowler876 This must be frightening for both you and your daughter. Are you in the U.S.? Is your daughter seeing a doctor in one of the national cancer centers? Would she like another opinion? Mayo Clinic is on this list and there are many others across the country.

—NCI-Designated Cancer Centers
https://www.cancer.gov/research/infrastructure/cancer-centers
Here is the link to request an appointment at Mayo Clinic:
http://mayocl.in/1mtmR63
Does this help?

afowler876 | @afowler876 | May 4, 2023

In reply to @naturegirl5 "@afowler876 This must be frightening for both you and your daughter. Are you in the U.S.?..." + (show)

We are in the U.S, and yes its very frightening as she is only 26yrs old. We arent at one of the national cancer centers and I am considering a second opinion.

Helen, Volunteer Mentor | @naturegirl5 | May 5, 2023

In reply to @afowler876 "We are in the U.S, and yes its very frightening as she is only 26yrs old...." + (show)

@afowler876 Your daughter is so very young to be facing cervical cancer and such a decision. It’s so good that she has you to advocate for her. I hope your daughter makes an appointment for that second opinion. Will you let me know what she decides and where she will go?

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