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@patrick031621

I just had my what has become a yearly as opposed to every three to six month scan of my lungs and body cavity with a CAT scan and MRI. I am starting my 21st year with NETs and things are remarkably stable with no growth or spread from my liver, mesentery and heart. I take a monthly injection of Octreotide.
I am a strong advocate of dietary restrictions. That means low calorie intake, essentially a plant based diet with a modicum of fish or chicken (as an example only a third of a can of salmon each day), almost total elimination of sugar from my diet such as in candy, ice cream and so many products too numerous to mention. Before I buy any product I look for its sugar content which eliminates the majority of packaged foods and almost every beverage that is out their like fruit juices and soft drinks. I rarely eat out, not knowing what is in the food.
Cancer needs food to grow and much more than normal cells. Logic tells you not to feed it. My cancers which are in inoperable places for the most part, remain, but have been seemingly dormant for years. I am now almost 77 years old. I cannot prove the efficacy of my approach but I believe in it. Of course it takes a lot of discipline and sacrifice of things we used to enjoy in eating but I function very well walking three miles a day with large dogs. The reality is that we need so much less food and calories than most of us get and besides keeping one's weight down is healthier. I don't mean to preach and actually abhor it but once again I do believe in reaching out to those I know are suffering while I seem to be skating relatively through this health crisis.

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Replies to "I just had my what has become a yearly as opposed to every three to six..."

Wow! You are truly a determined person and a good example for me. I have often thought of changing my diet but never followed through. I think you have given me the final push toward that step after hearing how well you have done for 20+ years. Thanks for the inspiration, and keep up the good work! I also have NETs in the heart cavity, cecum, lymph nodes, liver and heart cavity and felt doomed. You have given me hope. Thank you for that!

It was great hearing your Story, I go for my first follow up scan June 21st to see if the Lanreotide shots were effective. Thanks for the inspiration…