Hi Tina,

Twice Survivor of cancer myself - female organs, though. Once at age 14 and the following and final before a full radical hysterectomy removed all organs in the reproductive vicinity in 2020.

Yes - the Abbott Proclaim XR DBS (Deep Brain Stimulator) helps me... have you done TENS Units, but the supercharged high-grade type they have at PT places? It's like having one implanted into your body at all times.

Hmm... what else? You're not interested in different pills, don't blame you there! I got off of the Gaba drugs and a few others myself... Are you open to using natural supplements? If so I have a few ideas for you - nothing like new-age or woo-woo or whatever, just a few things that are known to help.

And : No matter how bad it gets, Move through the Pain! Othrewise end up with atrophined muscles, bed-bound, within a few years. My former PCP told me that when my health issues really became intense - I believe I was or would soon be 35 or 36, by that time, and she definitely sent the message loud and clear when she explained that she knows women who do NOT get out of bed by aged 40 because they simply cannot - I was bedbound and have days when I am bedbound, and I have days where I have to crawl or I get stuck sitting outside and I'm a Fall-Risk, but other days I can Walk.

I know a lot of the folks on here are far older. I am turning 40 next month - can't feel anything but the trunk of my body and parts of my shoulder and patches of my face - ALL ELSE is NUMB and it's brutal --- I"m honestly jealous of those of you who ended up in these rooms AFTER age had its way with you. I just want to be able to walk, to not have tot hold my bladder...

@lambchoptina2, idk how old you are or how recently you've been diagnosed but I'm here and I have some options that are hoenopathic and naturopatic, or rely on things like silicone, electrodes, magnets, leads, battery packs... and can be external TENS Units, if you want, or internal DBS/SCS surgical procedures if you want...

Last thing: trigger point injections, epidurals, botox for migraine, and some 'pain' meds - esp what my pain doctor considers to be 'herbal supplements' - oh and I've also learned some things like: what to avoid.

My SFPN was pretty manageable until I was the survivor and the not-at-fault party to a car accident where a younger and aloof kiddo in his early 20's rear-ended me at a stoplight... this accident happened to just shatter me. But before that, I was doing Aquatic PT and I was also, during Covid and prior to the avcciddnt in Nov of 2020, doing ballet barre by myself at least four days per week.

Hope some/any of this is helpful. If not, please feel free to disregard entirely. thx, and nice to meet you, Tina. I'm Nicole Marie