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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Nov 8 5:59pm | Replies (840)
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@leroy23

Who can help me connect with someone specifically who has had HIV for over 10 years and now has kaposis-sarcoma?

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Replies to "Who can help me connect with someone specifically who has had HIV for over 10 years..."
cc44 | @cc44 | May 6, 2023

Hi Leroy,

I am a sarcoma survivor and peer counselor. A peer patient of mine has had HIV for a long time and also Kaposi's sarcoma. For patient confidentiality, I would have to clear providing his contact information with the peer program as well as the patient. Let me know if this is something you would like me to pursue and I would be happy to try.

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sagan7 | @sagan7 | Aug 8 11:57pm

Hi Leroy,

I’m a 43 year old man who has been living with Kaposi’s Sarcoma for the past 10 years. I don’t have HIV and my physicians believe I developed it due to my Mediterranean background. In all this time, I have never found anyone else with it and I would love to connect. Please reach out.

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