← Return to DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

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@debimsr

I was just diagnosed yesterday, (5/2/2023) but have had issues for years. Had never heard of "DISH", and my attempts to research it to gain clarity on the syndrome have not been too successful. Apparently, my diagnosis is correct via radiology, but my "symptoms" do not match those of the limited, older material on line, my complaint IS pain. Significant, limiting and in various joints. I am happy to have found this resource and your post, (which I just NOW saw was from 2018!) in hopes of learning more actual info on this issue. (Note: this is my 1st time on this group, and I hope it is still functioning, as all comments etc. date back to 2018?)

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Replies to "I was just diagnosed yesterday, (5/2/2023) but have had issues for years. Had never heard of..."

Yes. I would go back and take a look at all the posts about this particular disease. I know I have commented several times since I was diagnosed back in 2019 I believe. I have learned off a lot about the disease and have read a lot of information found on the Internet, but I tend to stick to the medical sites with good reputation and I review them medical studies. I have a rheumatologist, which certainly knows about Dash but there is not anything he can do medication wise much for me, except for some Lidoderm patches and encouraging nonsteroidal medication use. I have been to a spine specialist, who also knew information about this disease. but pain management has been the discipline that I have used the most. As I have stated in some of my post, it’s not perfect but it does take the edge off and keeps me moving which is the name of the game. I am in health care, and it probably makes it easier for me to digest some of the articles. I hope you find yourself, a good doctor or two who will actually take the time with you. You will probably have a few specialists that can help you with this and I guarantee you will also after reading all the materials that you can, educate physicians about this disease, because they were told that it wasn’t anything to be that concerned about. And for some dish patients that may be the case. But, as I read with one surgeon who said dish isn’t a problem until it is . My thoughts and prayers are with you as you start your journey.