I am having the same issues. I had a TKR in 2019 after 2 years pain was getting a little better but never went away I have felt constant pain since the first surgery. My knee got infected the first time in 2021, I went to the hospital with sepsis had immediate surgery the next morning. They opened my knee up scrubbed it out and sent me home on IV antibiotics. It got better still painful though but I could walk. I got my second infection in 2022 I set in the hospital for 5 days without seeing an ortho doctor because they did not believe my knee was infected I got worse and on day 4 my organs were shutting down finally my wife got the administator to send in ortho they put me in surgery I was on vent for 3 days and unconscious from surgery. I have had 3 surgeries since than and changed surgeons to one in Indianapolis. They took out my prosthetic knee in the last surgery and put in a steel rod and a cement spacer with antibiotics. I have been in constant pain since then, november 19th. I am non weight bearing and on a walker. I had 6 infections of cellulitis or allergic reactions since then. It starts with high fever up to 104 degrees Fahrenheit last 48 hous then I devolope a rash on my inner thigh. I think I am allergic to nickel and the chemicals in the cement it is the only thing that makes sense. My surgeon or infectious disease doctor will not even discuss it as a possiblilty they keep blowing me off saying there is no way that is what it is. Does anyone know of a doctor that specializes in this? I have been dealing with this since august I need some answers the surgeons are now thinking about fusing my knee joint together straight I refuse to give up and do that. Thanks for any advise or help I can get.
DJM