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When do you know if it is time to start dialysis with CKD?

Caregivers | Last Active: Jul 8 11:24am | Replies (45)

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@gingerw

@jprust I know it has been a couple of months since we connected here on Connect. How are you doing, and also importantly, how is your husband doing? Has he made any decisions about dialysis, or further treatment?
Ginger

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Replies to "@jprust I know it has been a couple of months since we connected here on Connect...."

More than a year later. My husbands egfr is now at 12. The nephrologist called after the last bloodwork and asked him a bunch of questions. He has not lost weight. He is very fatigued, and about a month ago was having bouts of rage. He has bipolar but it has been in remission for years. In the past this has happened in the spring.
My questions are about the initial startup for dialysis when he needs it. He wants to do the PD home dialysis.
Can you tell me the way this happens? When do they start preparing the site and how do they train? Does someone come to the house and evaluate to help us make the space?

He had a gfr of 17 for a few years, then it was 16. Then a month ago it was 13, then a week later it was 12.
The kidney damage was from taking lithium for 30+ years. He is on a transplant list but odds are he won’t get a kidney as he is 75 years old.