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I went to three different neurologist before I was finally diagnosed at my insistence. I had many tests and none revealed anything. I had two sets of blood work, including the 4 hour glucose test and 24 hour urine collection which all came back fine. I went to a rheumatologist at the suggestion of one doctor. She ran a bunch of tests and nothing. I did some research and they talked about this EMG and needle conduction study which none of the doctors had even suggested. That is when I was finally diagnosed after eight years. Now I’ve been referred to Shands UF health in Gainesville Florida. My question now is, what do they plan to do there? Honestly, I think this is a waste of my time.
I have until September to decide or cancel the appointment. Like I said in a previous post, I have pretty much lost all faith with the medical establishment. If I know anything, is it that you have to be your own health care advocate and be in charge of your own destiny. These doctors are just way too busy earning money to take the time necessary to help guide you to get the proper care required for this condition. If I sound a little bit angry, it’s because I am.
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All indications I have are that effective treatments for neuropathy are largely beyond the reach of medical science. But hey, give it twenty years, and maybe they'll have something. All I have to do is wait twenty years. Maybe AI will come to the rescue? Until then, I'll try to do what I can while I can - which is, of course, always true, but lately, it has taken on a new sense of urgency. I read somewhere that the latest thinking about old age is that it starts at 27. I guess that makes me a living fossil.