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Pain still 1yr and 4Mth post Colorectal Surgery

Digestive Health | Last Active: May 4, 2023 | Replies (14)

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@llcc8800

Hi @judithclark
You took the words out of my mouth. I’m so sorry that you suffer with adhesions and bowel obstructions. You sound just like me, I’ve had 10 abdominal and pelvic surgeries and multiple adhesions removal during surgeries (I was born premature at 24 weeks and developed necrotizing enterocolitis (NEC). and I’ve had multiple bowel resection s and two bowel obstructions. It’s awful. I just had a doctor appointment today where my doctor asked me what else we could try for my 24/7 abdominal pain from severe adhesions and I just cried and said I didn’t know. I’m praying for all of us suffering.

It’s so strange to me that if you look up stuff about adhesions, most articles say that adhesions do not affect most people, yet there are so many people on here who suffer from adhesive disease.

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Replies to "Hi @judithclark You took the words out of my mouth. I’m so sorry that you suffer..."

That may be true. We don’t know how many people are not effected. Enough of us are effected though. I have had an obstruction twice that was cured by the NG tube. My last surgery was at Stanford last June for an incisional hernia and an adhesion clean out. I was great for about 6 months. Now I am in worse pain and abdominal issues than ever.
Stanford is doing some research on adhesions. I asked my Stanford doctor who is the chief of surgery, Dr. Mary Hawn but she wasn’t saying much. As I recall, it is a pill but is also inhibits the immune system. We have to wait and see.