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Pain still 1yr and 4Mth post Colorectal Surgery

Digestive Health | Last Active: May 4, 2023 | Replies (14)

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@judithclark

I have been going through this since my appendix ruptured on a cruise ship in 2015. After airlift to the Azores, I had 5 hours of open surgery. Anytime you have abdominal surgery you get adhesions or scar tissue. Scar tissue on the arm is no big deal but in the abdomin it inhibits the movement of the intestines. You can’t see adhesions on any testing. Sometimes you can see where they have pulled things out of place. The only way to fix these is to cut them out during surgery. This just causes more adhesions. The more surgeries, the more adhesions. Sure surgery helps for a time but they all come back eventually. They can also cause an intestinal obstruction. If they do you may need surgery or just an NG tube and decompression in the hospital for a few days. I have had 5 surgeries and now my cecum which belongs in the lower right quadrant is now up by the left lobe of my liver. I am trying not to have surgery yet again.
This is why doctors don’t want to discuss this as they won’t do surgery unless you have an obstruction. It is indeed a terrible place to be.

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Replies to "I have been going through this since my appendix ruptured on a cruise ship in 2015...."

Hi @judithclark
You took the words out of my mouth. I’m so sorry that you suffer with adhesions and bowel obstructions. You sound just like me, I’ve had 10 abdominal and pelvic surgeries and multiple adhesions removal during surgeries (I was born premature at 24 weeks and developed necrotizing enterocolitis (NEC). and I’ve had multiple bowel resection s and two bowel obstructions. It’s awful. I just had a doctor appointment today where my doctor asked me what else we could try for my 24/7 abdominal pain from severe adhesions and I just cried and said I didn’t know. I’m praying for all of us suffering.

It’s so strange to me that if you look up stuff about adhesions, most articles say that adhesions do not affect most people, yet there are so many people on here who suffer from adhesive disease.