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PMR and Inflammation Markers

Polymyalgia Rheumatica (PMR) | Last Active: May 11, 2023 | Replies (30)
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@gailg

Doctors "think" I may have PMR, nearly 3 years into it still negative markers but all the other symptoms are spot on. Since negative markers they won't prescribe prednisone. Just want to say, the pain/weakness progressed from hips/thighs, to shoulders/arms, and onto hands. I lost strength in my hands and they were very painful. The doctors tried to tell me it was Carpal Tunnel but I knew it wasn't. My hands are now pretty much Ok but I've had a relapse in hips/thighs. I live on Ibuprofen and really question what the doctors really know about this.

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Replies to "Doctors "think" I may have PMR, nearly 3 years into it still negative markers but all..."
lizbethobrien | @lizbethobrien | May 4, 2023

These are my thoughts based listening to doctors who have treated PMR. Markers are not always present, PMR is always treated with prednisone, and if you do have PMR which is being treated with prednisone your symptoms in most cases improve or go away almost within days of being on prednisone. This is one of the tale tale signs that it is PMR. Plus when they taper you off the prednisone and symptoms return, it is another strong indicator that you have PMR. I would seek a second and third opinion

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lizbethobrien | @lizbethobrien | May 4, 2023

These are my thoughts based listening to doctors who have treated PMR. Markers are not always present, PMR is always treated with prednisone, and if you do have PMR which is being treated with prednisone your symptoms in most cases improve or go away almost within days of being on prednisone. This is one of the tale tale signs that it is PMR. Plus when they taper you off the prednisone and symptoms return, it is another strong indicator that you have PMR. I would seek a second and third opinion In addition, I had hand involvement too. At night it was at its worse I would have to soak them in hot water to make the pain subside. I to believe the onset of PMR could possibly be related to covid.

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robin1040 | @robin1040 | May 4, 2023

I have negative markers too and prednisone is the only thing that’s given me relief. They should at least let you try it.

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