My name is Bob. I was diagnosed with PC in May 2019, 2 lesions, Gleason 6. Started active surveillance with Johns Hopkins in Baltimore. Recently I had another biopsy in March 2023, a couple more Gleason 6 lesions but one Gleason 7, 3+4. My urologist recommended radiation with Proton Therapy. After a Decipher exam of the biopsy cores, I was told my genome test revealed high risk of metastasis, even though only Gleason 7. I was then put on hormone therapy with Orgovyx, which I started last Saturday, March 29 for 4 months. I also started my Proton therapy yesterday which will be 28 sessions.
My PSA was never over 8, usually between 5-8, which I had checked every 6 months while on active surveillance.
So I’m new to the PC game, haven’t experienced any side effects….yet.
I’ll keep this forum advised as to my progress.