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Replies to "My husband after more tests than I can count and 4 neurologists was diagnosed with distal..."
Neuropathy | Last Active: Jun 1, 2023 | Replies (107)
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My husband after more tests than I can count and 4 neurologists was diagnosed with distal axonal sensory polyneuropathy or as he called it "Rubbery Legs" and yes he had fallen several times and couldn't get up. Now here's the kicker, this according to the 4th neurologist, an Irishman, the problem was caused by drinking. He stopped, 10 months sober, and is about 90% better. We had told all 4 neurologists about the drinking but only the Irishman listened. Seems to be an ignored issue by the medical community...good luck !
Replies to "My husband after more tests than I can count and 4 neurologists was diagnosed with distal..."
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Good morning, @casey1329
It is striking, isn't it, how those of us with this particular condition, and after only a few years, end up having amassed a whole "family" of specialists! It says something about how determined we are to puzzle out what's afflicting us and how difficult it is to learn the answer. You may have read in one of my earlier posts how I, too, was left speechless when one of my neurologists, after looking over one of my brain MRIs, asked if I had once had a problem with alcohol. The truth was: I did. But that was 30 years ago. What about my brain MRI might have made this neurologist ask that question? That's when she explained that heavy alcohol use leaves its mark, an indelible mark that will be there for a clinician to see even decades later. Amazing, isn't it? Had I known that 30 years ago, might it have made any difference? Probably not. But who knows?
Ray (@ray666)