I have had it for years also. Mine began when I had Lyme disease years ago. And yes no Dr. seems to have any idea what is causing it. I do believe it might be connected with Sjogren's. and it certainly involves the nerves in part of my tongue and inside of lips. Miserable! I do know that it is a condition of women but no one seems to be investigating that. It makes me think that hormones might be involved.
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