Is getting a CT scan & bone scan standard for early breast cancer?

Posted by brighterdays @brighterdays, Apr 20, 2023

I was diagnosed with stage 1A, ER,PR+, HER-, T1, N0 EBC. I had a lumpectomy. My doctors did not order any additional CT and bone scans but the nurse from where I’ll be getting a second opinion called and said I should get it done. I’m worried now. Is EBC ever misdiagnosed when it’s actually metastatic?

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@jpnnobx

No bad reaction to bone scan and I’ve had a minimum of 8 of them. You lay in scanner and it goes from head to toe examining each area. It takes about 20 min. They do inject the dye and then you come back 3 hours later for scan. You can eat and drink liquid during this time. I joke with the staff and say I pee green but you don’t! I hate to do as many as I have but I’m Stage 4 so they want to keep an eye on my situation. The last bone scan it actually said you could get more info from my CT scan. If I can’t get PET scan due to insurance then they do both CT and Bone scans at the same time. Plus your not in a capsule during scan it’s a machine over the top of you. Good luck!

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the dye is what I'm concerned about

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@cctoo

the dye is what I'm concerned about

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You don’t feel the dye. Drink lots of water to help flush out. I also do coffee enemas to help detox, especially the liver.

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@jpnnobx

You don’t feel the dye. Drink lots of water to help flush out. I also do coffee enemas to help detox, especially the liver.

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thanks!!

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@californiazebra

I agree with others that scans put me at ease because they are such a great diagnostic tool to be sure cancer hasn’t spread. I had all the scans when I had stage 1 breast cancer CT MRI PET. Now I have MBC and wish they would do an annual bone scan routinely for my peace of mind but they only did that one during the initial scans. To me all scans are very easy to do. Breast MRI is the only challenge for my body due to Superman flying position. I always breathe easier when scans come back good. Hugs to you.

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I agree, why they don’t do a bone scan or pet scan must be a relief, especially when you’ve been diagnosed with cancer. I’m going to talk to my oncologist on my next visit. Thanks for your input

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@leebeth

I did not have any imaging, until I had a chest and abdomen CT prior to a GI consult. They saw some red flags so they ordered a bone scan and repeat CT and they were fine.
Both of my oncologists said no imaging with my Stage 1B.

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Stage 1 er+ breast cancer with lumpectomy, chemo and radiation in 2019-my oncotype indicated high risk for reoccurrence.
I begged my oncologist for a PET scan to put my mind at ease and a very large tumor in my thigh appeared, not cancerous but rare and aggressive which is finally being surgically removed next month. 🙏
Ask for what will provide the information to put you more at ease, the fear of reoccurrence is very real and i hope your doctor can provide what is needed.
I wish you a healthy, long life. 😊

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@colleenyoung

@brighterdays, did you get further imaging scans done?

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No, I had a bilateral mastectomy stage 1. With breast cancer so prevalent in my family I’m going to talk to my oncologist on my next visit and ask for a scan. I have a great fear of it coming back some where else. Probably a insurance thing I suppose 🤬

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@dolphina3

I had early stage breast cancer and had MRI ,Cat Scan and bone scan. They can see where the cancer is and make sure it isn't anywhere else. I'm glad they did this. It made me feel safer and they new what treatments to give. Best wishes on your journey. Think8ng of you.

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I had a bilateral mastectomy stage 1. My doctor did not order a bone scan which I would like if for my piece of mind. Wonder y drs do not do that, is it a insurance thing?

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I think if the cancer is at start sight and hasn't gone out into the breast they don't do alot of testing. Not sure tho. I live in Canada so it if covered in the area I live. Ask them if they will do it for you if it will make you feel better. Check with your insurance to see if they will cover it. I had stage 2 a which means it was out in my breast. Good luck.

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I had a scan immediately after dx, then another scan after chemo to see effect, then last scan was after surgery. Last scan clear - so hurray, I now start on scans only as part of maintenance and survelliance.

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@californiazebra

I agree with others that scans put me at ease because they are such a great diagnostic tool to be sure cancer hasn’t spread. I had all the scans when I had stage 1 breast cancer CT MRI PET. Now I have MBC and wish they would do an annual bone scan routinely for my peace of mind but they only did that one during the initial scans. To me all scans are very easy to do. Breast MRI is the only challenge for my body due to Superman flying position. I always breathe easier when scans come back good. Hugs to you.

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How long inBetween your scans did they find MBC? Im having my first PET scan tomorrow. Wondering how often I should do them now

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