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@misu

Everybody in this thread sounds like they're not accepting their diagnosis, nor giving in, so it sounds like I found my people. I was diagnosed with idiopathic polyneuropathy after what I considered a perfunctory examination. Nothing was offered by way of treatment. I do not have a great deal of pain, but was told it's coming. I always thought it was a compressed nerve, and potentially fixable, maybe with surgery or splinting. It began 5 years ago with a small patch of odd sensation on the ball of my left foot, which now is a low-grade numbness that is above my knee. If I stretch my toes it feels like tiny sparks are shooting out of them. I'm not desperate for treatment because the pain is mild, and the condition seems to be blocking me from feeling the worst pain from my severely arthritic left knee. I'm not even aware of the nerve issue found in my right leg. I asked for nerve conduction testing and got no response. Does anybody else feel like their neuropathy diagnosis might have been in error? I was just refused knee replacement surgery, possibly due to the neuropathy -- the surgeon said TKR is for pain, not function. I don't know what to make of that.

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Replies to "Everybody in this thread sounds like they're not accepting their diagnosis, nor giving in, so it..."

Hi @misu,

You are right not to accept your diagnosis until you’ve had a complete work up from a competent neurologist. You should see a neuro-muscular specialist if possible, and get all the standard bloodwork, plus EMG, and MRI. Idiopathic is not a diagnosis, it’s a failure to find a diagnosis. That happens, but make them do the work before they give you that label.

Good luck.