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@rosemarya

Debra, I can't help but wonder who that friendly person was who introduced you to Mayo Connect! I would like to thank them.

It is great to learn that you found support by reading and participating in the Hypertrophic Cardiomyopathy (HCM) Support Group. Receiving and giving support is what Connect is all about. I think that I am not alone in saying that I'm glad you progressed from "stalker" to participant by joining Connect.

Last September, my husband and I traveled to Crescent City on the Pacific Coast in Northern California to see the Redwoods. Was I anywhere near the home of the Karuk tribe and your native roots? It is an absolutely beautiful area.

I also want to thank you for accepting the challenge of being interviewed for this spotlight. I really enjoy doing the interviews and getting to know more about the patients beyond their medical issues. By the way, I made sweet potatoes for dinner!

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Replies to "Debra, I can't help but wonder who that friendly person was who introduced you to Mayo..."

Miss Rosemary, you are a SAINT! Thank YOU for your patience with me doing this interview. If anything that was the challenge of this...working with me! I have a lot of words and I am not afraid to use them! I had no idea that one day I'd have to have open heart surgery, and that the surgery is so precise only a few places perform it, of which Mayo is one. My local cardiologist, who diagnosed me with sub-aortic membrane, was going to refer me to our local heart surgeon for open heart surgery. I may not even be here had I not asked him to send me to Cedar-Sinai and Mayo Clinic for outside opinions. That was probably the biggest take-away for me. I had to be my own advocate and push. So many people don't have access to teaching facilities and they need to be their own advocate. Mayo Clinic Connect was so very helpful in finding out all sorts of things I'd never known. My FP was born at St Mary's in Rochester, and going to see him is second best to being there. He is so smart!
If you traveled down Hwy 101 south past Crescent City then you passed by my other tribe, the Yurok tribe. Both tribes live along the Klamath river. Yuroks are "down river" Indians and Karuks are "up river" Indians. The mouth of the Klamath, where it flows into the ocean, is Yurok tribal headquarters. Happy Camp (yes really) is Karuk tribal headquarters. Its very close to Oregon, but out in the middle of nowhere. Both tribes are Federally recognized and both tribes work hard to remember our native ways, and teach them to the younger ones. I actually bought and brought two Yurok t-shirts as gifts for Dr Bagameri and Dr Dearani, the surgeons. I also consulted with the Karuk tribe before surgery to ask about anything special I needed to do before. They told me to offer tobacco to the Father as a blessing. We grew tobacco. Who knew?
Yes. It took me some time to quit stalking. But I am glad I 'came out' too. The support offered here is so real. So genuine. I am so blessed! Thank you again, Miss Rosemary! Did I mention I love potatoes? 🙂