@colleenyoung @liztbnr Yes, I took the articles with me to the doctors and told them that I wanted to try rituximab. I kept pushing and then when I had a downturn, they agreed and i got 2 doses of rituximab. Make an appointment with your rheumatologist and tell them that you’re fading away from this disease and you know there is treatment. Tell them you want to try rituximab and give them the article.
There must be some large medical centers in Tucson, so you can also call them. Enlist your husband’s help in making calls. And try Mayo Clinic again!
Think you can become your own advocate? I know you can!!