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Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Neuroendocrine Tumors (NETs) | Last Active: Feb 26 7:54pm | Replies (77)
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@stevestenberg31

Follow up to this. The tumor in my SI must have been causing a partial blockage. The pain got so extreme i went to the ER 11days ago. A CTScan with dye indicated the SI had wrapped around the NET blocking the SI. Next day surgery removed 8inches of the SI, the primary tumor, and gallbladder. 10 days later still recovering from the surgery but able to eat more food without bloating and associated pain. Gaining weight after 5months of weight loss.

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Teresa, Volunteer Mentor | @hopeful33250 | May 2, 2023

@stevestenberg31

I so appreciate the update about your surgery. You explained the situation so well.

I am glad to hear that you are doing better post-surgery. That sounds like a very extensive surgery. How long were you in the hospital after the surgery? What type of eating plan are you following now?

Are there any follow up treatments being planned?

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