Thank you Sue!

For me it has been learn as I go and then connect the dots. My first symptom that stood out was excessive fatigue. While I was diagnosed with MAC 3 years ago I lost a lot of weight last year - 125 down to 94 lbs. in an attempt to find out why my primary care doctor ordered a full body scan - neck down. I had this done at a hospital and the results came back - pneumonia. What they were seeing in my lungs was MAC and I even told my primary care doctor my belief at that time - MAC not pneumonia. I have to remind myself that MAC is rare so not many doctors (even pulmonologists) have treated women with MAC. My first pulmonologist has had me on 3% saline from the beginning. I have an appt with him next Friday and one thing I am going to insist on is an increase from 3% to 7% saline. My CT scan in Dec showed MAC twice as bad as the previous Dec. I have learned more about MAC in the months I have been on this site than 3 years under pulmonologists care.