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My son has hives on his skin and Dr suggests XOLAIR

About Kids & Teens | Last Active: May 5, 2023 | Replies (15)
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@ssnyder01

Yes, Mayo was great. Very helpful. Out plan was initially to give Xolair 6 months and then f/u with Mayo again.
Luckily he has been swimming still. He swims year round between club and school team. The POTS doc is very adamant that he continues with this, otherwise he would be way worse than he is. His times have seen a steady decrease in the past 2 years. It is quite devastating for him for him to add time like he has been. And we aren't talking a second or two. Like adding 14 seconds to a 100. It is heartbreaking actually. I am really hoping that Xolair helps.

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Replies to "Yes, Mayo was great. Very helpful. Out plan was initially to give Xolair 6 months and..."
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | May 1, 2023

@ssnyder01
I think it is great that he is able to swim. I understand how frustrating it is for him to see the added seconds. On the other hand, he is continuing to use his muscles which will make it easier when his illnesses are controlled.
When my son got sick we first noticed it at a meet. He was like a rock thrown into the water.
Has he talked with a psychologist about his situation?

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