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DiscussionMy son has hives on his skin and Dr suggests XOLAIR
About Kids & Teens | Last Active: May 5, 2023 | Replies (15)Comment receiving replies
Replies to "@ssnyder01 Thanks for the update! It’s great that he was seen at Mayo. It may be..."
Yes, Mayo was great. Very helpful. Out plan was initially to give Xolair 6 months and then f/u with Mayo again.
Luckily he has been swimming still. He swims year round between club and school team. The POTS doc is very adamant that he continues with this, otherwise he would be way worse than he is. His times have seen a steady decrease in the past 2 years. It is quite devastating for him for him to add time like he has been. And we aren't talking a second or two. Like adding 14 seconds to a 100. It is heartbreaking actually. I am really hoping that Xolair helps.