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I am a very active 60 year old semi retired health care worker . My PMR came in suddenly and severely
Affecting both hips and shoulder areas. I was travelling at the time and figured I picked up a virus . I struggled for the first month with walking , and returned to home with many questions and concerns . It’s difficult in a broken health care system to get answers on this disease and I must say reading your posts have helped me so much . There is so many common findings here . I believe I had a perfect storm
For PMR … autoimmune ( Graves’ disease) stress and I had the bivalent injection and flu shot just ten days prior to my flare up . There is a pattern here but there is a big stigma in health care relating the vaccine to PMR . I’m not an antivacer , but it is a coincidence. And one I just avoid talking about to most professionals . Fast forward the two following months I travelled again to help my sister with her cancer only to receive her helping me with my clothes and pony tails and passing a coffee cup at times I can’t even drive I’m so stiff in the mornings .
Being a boxer and runner( not lately or anytime soon ) I can honestly say this is such a humbling, bizzare. And real disease . But I have had some amazing results with my naturopath , GP and internist . 1) I do not want to take prednisone . Just reading from this site it scares me .
2) diet IS everything … Mediterranean all the way and then some ..
3) hot tub, LIGHT exercise , TYLENOL to the max , hey I even used horse lineament on my shoulders , lots of water and a small tens machine .
The naturopath gave me some supplements ( I was never into that ) but hey they are working believe me .
Not Putting down prednisone I will use it if I have to . But now at 5 months in with a lot of knowledge and support even from
All you guys . I’m doing this . Diet is key . Good luck and Ill keep reading all your posts because it helps too .
Replies to "I am a very active 60 year old semi retired health care worker . My PMR..."
So i git PMR 5 months ago but it took 4 months to diagnose
The stiffness originsl was in my hips and i hsd severe miscle weaknessd in my legs .It then moved to my shoulders especially above anf below the shoulders. Then my fingers started to really hurt . I could not dress easily, brush my teeth or touch the floor. P MR was diagnosed after my physio told to gave a blood test and then suggest PMR to my Doctor.
I was precribed 15 mg of Predistone and in 1 day I started to feel better By 4 days in 95% of my symptoms had dissapeared. I know taking steriods can be scary and over time you need to wean off them. However for me Predistone is a wondet drug like a miracle and living with PMR pain is the enemy from
hell So please dont be frightened just take it.
Hi - I can only give my experiencc on Predistone.
NO PAIN
NO SIDE EFFECTS
ONLY A MIRACLE
The journey to reduce from 15 mh a day has started so i will keep you updated.
Also just for info i take my 15mg dose in 3 x 5 mg dose spread out so 1 in the morning and same at 14.00 and evening arounf 21.00
It works for me.please.do not fear Predistone only to suffer pain.
My understanding and experience is that Tylenol does not impact PMR. Advll does. Not yours?
echogirl2019, Has no one told you that prednisone is the only reliable way to control PMR? Has no one told you that without prednisone, you run the very real risk of PMR's big, ugly sister, GCA blinding you permanently? I have had both (yes, both) conditions for almost 4 years and have been active on a British PMR/GCA forum most of that time (healthunlocked.com/pmrgcauk). That forum has over 18,000 members and dozens of members who, in ignorance or defiance of the facts, are now blind in one or both eyes. Please don't risk it, I'm not.
I suspect big pharma of some ugly things too, but please don't be the one who "cuts off his nose to spite his face".
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I was never on Prednisone because nobody diagnosed me until 2 years into this. I suspect it is too late now, even if I wanted to take it. I survived on massive doses of Ibuprofen which so far has not caused me additional problems, but it does concern me. I'm trying to go to Tyelonol and wondering how many you have to take to function and if it has caused you any additional problems. Also trying to be better (I'm not bad) about diet.