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My son has hives on his skin and Dr suggests XOLAIR
About Kids & Teens | Last Active: May 5, 2023 | Replies (15)Comment receiving replies
@ssnyder01
Was your son allergy tested with possibility of regular allergy shots instead of going directly to Xolair?
Here is the Xolair company’s information:
https://www.xolair.com/index.html
I’m so sorry he has to deal with possible long Covid.
My two daughters swam in college. However, one had to quit the team due to Fibromyalgia.
My son missed a lot of school in 10 th grade because of Fibromyalgia. He was also an excellent swimmer. He was able to continue on the high school team but not on the private team or qualify for a college team.
I understand how devastating it would be for him not to be able to attend college.
One way to attend college is to attend a community college initially - being able to live at home- and then transfer to another college.
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Unfortunately he doesn't have any allergies. He has POTS, MCAS and long COVID (all diagnosed at Mayo in February). He is doing Xolair for cholinergic urticaria. Unfortunately, his allergy doc is not very good. Mayo is the one who recommended doing Xolair so that is the only reason the current allergy doc finally agreed to try it after a year and a half of things getting worse. We have a consultation with another local allergy doc next week. Hopefully he will have some ideas. Otherwise we will go back to Mayo (but it would be nice to have someone closer to home).
It is really hard when kids have to give up their passion. Fibromyalgia is a hard thing to live with also. It is so hard to see your kid(s) suffer.
Yes, community college is definitely an option. It would just mean for sure no swimming and that is all my son really cares about at this point. 🙁