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ADPKD and Intermittent Fasting
Kidney & Bladder | Last Active: May 2, 2023 | Replies (8)Comment receiving replies
Ginger, this is a 100% horrible question but I'm on a great and private medical forum. I've always wondered about this: What is the dying process if I refuse dialysis or a transplant? I don't have children, had an absolutely wonderful life with my husband. We've talked about this. He has been positively responsive about that decision but thinks I'm overthinking the seriousness of my condition. I'm active, energetic, feel great, weigh 135 lbs., and love life. I have reservations about dialysis, hate the thought. And wonder if a transplant is even viable. Honestly, I feel comfortable about considering that option but don't know what it would be like. Are you able to offer that scenario or is it against a volunteer's area? I don't want to put you in a weird position. I should ask my Nephrologist, but he'll say "oh you'll live to 100" like he always does.
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@mrainne
Well. This is quite the question! I hate to think I have hijacked this thread, but you were the one who created it, so here goes!
I cannot be transplanted for a new kidney because of my cancer status. I am on dialysis for the rest of my life, my life as I choose to live it, or not. I am attaching a link here from the National Kidney Foundation, that addresses the question you pose. Personally, I have known one person who chose to not go forward with dialysis, much to her husband's sadness. It is indeed a personal choice.
As far as being eligible for a kidney transplant, ask your nephrologist for a referral to a nearby transplant center, if you want to explore that option. Remember, there are several great websites also that will give you preliminary information. While my options don't exist, that doesn't mean yours don't. Does this all help you?
https://www.kidney.org/atoz/content/dialysisstop#:~:text=This%20varies%20from%20person%20to,and%20their%20overall%20medical%20condition.
Ginger