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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: 4 days ago | Replies (194)
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@tinae

Thanks for sharing Becky may I ask how old you are or how old you were when you were diagnosed? If I can go 15 years without the first guy I’ll probably be dead, so not really up 57 today but I am more worried about like working in the balance thing I mean like you I probably will decide just to go deaf, but at this point, I’m still on the methotrexate trying to see if I can find a functional medical doctor that might be able to prescribe more supplements and things I keep reading up on it I was hoping research would be better. I didn’t realize it’s been around that long so it’s terrifying to think after 30 years they still have no answers. Thank you for sharing. I really appreciate it.

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Replies to "Thanks for sharing Becky may I ask how old you are or how old you were..."
beckyseattle | @beckyseattle | Jul 4, 2023

For balance, I finally ended up spending a couple months working with a physical therapist. Like everything else, no miracles but much much better turns out your muscular system knows how to do balance, but to get good you have to be strong. I got part way.

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