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Adrenaline-like surges all night long

Autoimmune Diseases | Last Active: May 1, 2023 | Replies (2)

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@becsbuddy

@amarie441 Welcome to Mayo Clinic Connect! I certainly hope we can help you and your mom. We’re not able to diagnose your mom , but we can try to direct you to the right resources. You say that your mom has been sick for about 5 years with stomach problems, has ‘adrenaline surges’ at night, and a history of autoimmune disease.
Here’s an idea of some things you can do:
1. Start a journal. Enter your mom’s medications, medical history, list of doctors, and questions you/Mom may have. Take this journal to all doctor visits
2. Call your primary doctor for an appointment to discuss the adrenaline surges
Make an appointment with the doctor who looked at your mom’s stomach. He’s probably a gastroenterologist.
Make an appointment with her rheumatologist to discuss her history of autoimmune disease.
Go with your Mom to all doctor visits. You will be her strength and second set of ears!
This should be enough to get you going! I’ll also check to see if we have other members who can help.
Will you stay in contact with me and let me know how you’re doing?

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Replies to "@amarie441 Welcome to Mayo Clinic Connect! I certainly hope we can help you and your mom...."

Hi there,

I was diagnosed with secondary adrenal insufficiency, ACTH deficiency, at Mayo endocrinology. I do not make enough cortisol under stress, and I do not make enough at night. Normally cortisol levels fall lower at night. However, if they fall too low, the body goes into adrenal crisis, and adrenalin surges. I have to take extra cortisol at night, in order to NOT have the adrenalin surges. The extra cortisol calms things down, and I sleep better. I also have autoimmune diseases, gastroparesis, etc. It is difficult to test for ACTH deficiency; the morning cortisol levels DO NOT show the disease, nor do many other tests. It is a very difficult, risky and a test only offered at a few places, nationwide. Many doctors don't even understand it, and do not want to test for it. Good luck. I hope you find a solution.