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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)
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@colleenyoung

@chaka67, being diagnosed with a rare cancer can be very lonely. @catlazz and @moffitt both have gynecologic extramammary Paget's disease and have shared here https://connect.mayoclinic.org/discussion/rare-cancer-1/

I can't imagine the challenges your face with the 6 th surgery and also caring for your husband. Am I understanding that you were diagnosed with both Paget's disease of the vulva and breast cancer 10 years ago? And at that time they determined that the breast cancer was not Paget's?

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chaka67 | @chaka67 | Apr 30, 2023

Yes. The breast cancer was NOT Paget's. And yes, breast cancer, with mastectomy was diagnosed in April 2013, & Paget's with "simple vulvectomy" was December 2013. Not a good year! Thankfully breast cancer not recurring; not so with Paget's.

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