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@cambrose

My primary care provider (she is an internist) said "that sounds like PMR", right off the bat. She drew labs then (all normal) and began 20 mg. of prednisone. I was pain free within 48 hours. She said this quick response to steroids was almost diagnostic for PMR. Then while working through a taper and symptoms would come and go she and I thought a referral to a rheumatologist would be helpful. He drew many more labs, reviewed PMR and other autoimmune dx's but seconded My PCP's dx and treatment. He even said "you are the poster child for PMR" ..acute onset of symptoms, 70 year old white female. This was very reassuring to me (?poster child) and lessened my concerns that "something else" was going on. I am down to 3.75 mg of pred after 10 months, but still I have aches and stiffness especially with exercise. The challenge now is trying to find that balance and take the least amount of meds. This group chatting has been helpful as it has showed me the broad experiences with PMR that folks have.

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Replies to "My primary care provider (she is an internist) said "that sounds like PMR", right off the..."

This is good to know about the "normal" blood tests. My pain started 3 years ago and I've seen multiple doctors. Steriods (because they thought I had a back problem) really helped temporarily. Finally someone thought maybe PMR but my blood tests were normal so I was told couldn't be it. I am getting better but 3 years is a long time.. Thought about a rheumatologist but wonder if I can do anything at this late date AND my area is booking 6-9 months out.