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Anyone out there with Autoimmune inner ear disease (AIED)?
Autoimmune Diseases | Last Active: 4 days ago | Replies (194)Comment receiving replies
@tinae Hello and welcome to Mayo Clinic Connect! I’m sure we can answer your question, but we’ll need more information. When I looked up AIED, the only thing I found was autoimmune ear disease. Is that it and is it your primary diagnosis?
Replies to "@tinae Hello and welcome to Mayo Clinic Connect! I’m sure we can answer your question, but..."
I am deaf in my right ear from minear’s Desease. Last November i lost hearing in my left ear and could not understand any speech or music. I was terrified and went to an ENT who said it was AIED wanted to put me
on high dose steroids. I choose to call my Otolaryngologist that diagnosed my Minears. He said it was AIED and sent me to a rheumatologist that gave me a powerful drug for rheumatoid arthritis. I had a bad reaction and he had no other options. I am now going to be evaluated in May for a cochlear implant with my Otolaryngologist at UTSW.
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Becky,
I may have this very same problem. I have yet to be diagnosed by my ENT doctor, but my experience and symptoms are the same. Other than seeing my doctor in two weeks, what do you suggest I do next?
Ray Wiltgen