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@kjstein

@helloitsme It is nice to see so many comments to you! Congrats for choosing Mayo Phoenix for treatment! I was diagnosed with mets to liver from an unknown primary neuroendocrine tumor is January 2021. I also live in Texas but have been going to Mayo Phoenix. The NETS team there is wonderful--Dr. Sonbol is amazing! I've been receiving lanreotide injections since 2021 with few and tolerable side effects. I have also undergone PRRT treatments which significantly shrunk the tumors on the liver. I now receive my lanreotide monthly injections at my local Texas Oncology, but do my scans at Mayo with Dr. Sonbol coordinating with my local oncologist and leading my care team. The Connect group and the first Thursday of the month Zoom meetings will provide you with support and lots of information too. Stay positive, you are making good decisions!

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Replies to "@helloitsme It is nice to see so many comments to you! Congrats for choosing Mayo Phoenix..."

Thank you for replying, fellow Texan! I'm glad to hear that you're having such good luck with your treatment. This is a very scary road we are traveling, and I find your story very encouraging. You have also answered one of the questions I had for Dr Sonbol when I see him on May 25, which was about getting the injections here in Texas. Thanks for that! I hope you continue to have great results with your treatment...please keep in touch!