Hello sorry to hear about your diagnosis but glad you found this forum.
I was diagnosed with NETs last August with tumor on my lung and mediastinum non operable. I did chemo and radiation it reduced the tumors by 50 percent. On Monday I will get my 3rd lanreotide injection.. sometimes you will hear them referred to as somatostatins in the group. I will do PET scans quarterly to monitor the progress.

What I have found is that the diagnosis is much like a death notice and you experience some of the same emotions at first. Denial, bargaining, depression, acceptance, Just know afterwards we focus on staying healthy and managing the affects of the treatments.

Ronny Allan has a couple of great sites to visit. He is a long term NET survivor that has gathered all the information you will be seeking. Check him out for sure.

NETRF.org is another great resource for this cancer. They will send you a small book that help you understand the options available.

My advice is to stay as healthy as you can. Eat small helpings, get good exercise as treatments allow, and build a good support team around you. Trust in the experts actively listen, reassess what’s important and keep your focus.
NETs is a marathon not a sprint.

Blessings to you and your loved ones. From my home to yours.

CEB