Good morning to (hello it’s me) I was diagnosed Dec. 2022.. started in small intestine and metastasized to the liver. Currently going to Mayo in Jacksonville Fl. Surgery was also not an option. Started Lanreotide in February, I’ve had 3 shots so far. Side effects of the shots for me were minimal, diarrhea the first day after, and depending on what I eat stomach cramping and gas..I have a MRI scheduled in June to see if the Lanreotide was effective in slowing the spread/growth of the tumors.. may you have a blessed day.
There is a Virtual Neuroendocrine support group meeting every first Thursday of the month , along with this chat room I have found it helpful