Understanding advice for dealing with osteoporosis and navigating info

Posted by galactica @galactica, Apr 23, 2023

I am looking at where I went wrong following the advice to exercise, eat well and take supplements. I did all of that - religiously for 9 months and I failed and in looking and how that could have happened I have been revising my actions and the advice I followed and what went wrong so I can correct it and hopefully help others. I am embarrassed to say that it was just not obvious to me.

I was told that walking is great for osteoporosis - so I did a lot of walking. Working up to 10k steps a day - But I am now learning that walking, just walking does not build bone density if it’s leisurely, even if for long duration. It has to be at a significant pace. And of course stair climbing and the elliptical but the heart rate has to rise to a particular level as well. Find out what that is for your body.

Weight bearing exercises - that is not enough. The exercises have to specially and safely address the spine and other bones and they have to be done properly or one loses the benefit of the exercise. I needed more of some exercises and fewer of the others and squats, for example, I was not doing them properly even though I had trainers watching me. My exercise physiologist helped me with proper form.

A wide variety of vegetables is recommended - but there are fruits, vegetables and nuts that are high in oxalates. If, like me, you have an issue with oxalates or are consistently eating a high oxalate diet - spinach, Swiss chard, rhubarb, almonds, prunes - like I was - day in and day out - oxalates bind to calcium and are excreted through urine.

I was eating copious amounts of rhubarb, Swiss chard, collards, sweet potatoes, almonds, almond flour in my crackers and foods. I thought I was eating calcium rich foods that were helping me but they were making me worse. Nobody told me this could be detrimental to my particular bone health.

I know look at not only calcium content but how high the oxalate content is. So I am actually absorbing the calcium intake in and it is going to my bones. It bears looking into this. My calcium oxalate level on the 24 hr urine test was 396. I brought it down to the normal level of 21 by changing my diet alone. No medication. However I had to be diligent and I am now navigating getting enough nutrients and calcium while regulating oxalates.

It’s not enough to “eat a lot of green leafy vegetables and have your plate look like a rainbow of colors”. Because many have high or moderately high oxalate content and either need to be boiled and the water drained in order to reduce the oxalate level, or avoided altogether depending on your situation. It’s important to read up on and understand how oxalates affect bone health and I had to figure this out the hard way because no one told me, not one doctor. Until it was a problem. With osteoporosis and bone health in general, I think this is a critical piece of information. I dont understand why this is not included in the general information.

The other part of the equation is our digestive system. I realized that if my digestive system was not absorbing nutrients properly, no matter how much or how nutrient dense my diet is, if my body is not absorbing and redirecting g these nutrients to the parts of my body that need it, the benefit is greatly reduced. The digestive system has to be healthy and able to absorb the nutrients you put into it. I thought just eating a pristine healthy diet would fix this but sometimes one needs a little more support in this area.

I wanted to mention this because for me, I realized that it was not enough to know what to do, and all I was told and all I read was what to do. I know now it has everything to do with how and to ask questions and when told I am making myself crazy (vs being given answers to my questions) to go elsewhere. I am learning to ask the how’s and the whys these things are happening and to research as much as I can instead of just following what I have been told to do, which is just not enough, at least for me and my body.

And I also believe that there is this assumption that everyone with osteoporosis is going to take medication so maybe it’s not important to know. And that the medication will just fix the bones. But it is important to know. So important, whether one takes meds or not, doctors and healthcare providers have to go a big step further to offer more than the status quo of walking, weight bearing exercise and eating leafy green vegetables, as do the sites that put out information on bone health.

This is what I am learning.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

It sounds impossible to learn what to do and what to eat! How did you learn that what you were doing didn’t actually work?
I thought walking was weight bearing! I know running is better, but if your arthritis keeps you from running?
I understand the oxylates issue, and it’s great that you solved that without meds. I praise you for your research and answers!

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I take New Chapter calcium, which contains a small amount of strontium. My OD did not like that. It is a radioactive element and she felt she would not want me taking any more than in New Chapter. Perhaps the radioactive nature of it make it show brightly on the DEXA.

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@drummergirl

I take New Chapter calcium, which contains a small amount of strontium. My OD did not like that. It is a radioactive element and she felt she would not want me taking any more than in New Chapter. Perhaps the radioactive nature of it make it show brightly on the DEXA.

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Strontium citrate is not radioactive!!!!!!!!

It is a natural mineral.

It is entirely different from this:
"Strontium-90 is a radioactive fission product produced by nuclear reactors used in nuclear power. "

As for New Chapter calcium, the strontium in that is 3.7mg, which is a minute amount. The therapeutic dose is 680mg daily. I have no idea why these supplements put a negligible amount in there but I think it is misleading at best.

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@windyshores

Strontium citrate is not radioactive!!!!!!!!

It is a natural mineral.

It is entirely different from this:
"Strontium-90 is a radioactive fission product produced by nuclear reactors used in nuclear power. "

As for New Chapter calcium, the strontium in that is 3.7mg, which is a minute amount. The therapeutic dose is 680mg daily. I have no idea why these supplements put a negligible amount in there but I think it is misleading at best.

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I stand corrected Windyshores. I can just tell you my OD was not in favor and the alternative medicine Doctor at Mayo I spoke to highly approved of New Chapter.

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@drummergirl

I stand corrected Windyshores. I can just tell you my OD was not in favor and the alternative medicine Doctor at Mayo I spoke to highly approved of New Chapter.

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New Chapter calcium is from algae and there are other ingredients including magnesium, D3, K1 and K2, other things. That's great and I am glad your doctor approved of it. I was only saying the strontium amount is negligible (3.7-5.5 mg). Good luck!

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@windyshores

I have read that strontium can indeed improve bone density-if too slowly for some. So the issue is mainly that assessment on DEXA is skewed.

The problem is that posts claim gains that may not be accurate. But there may be gains, yes.

Europe withdrew approval over risks and side effects, not effectiveness. It is back on the market for severe cases who cannot take anything else.

My kidneys are bad, and I have a heart condition, or I would consider it as a follow-up to Tymlos, to be honest. My doctor doesn't work with it, and Keith McCormick (who wrote "The Whole Body Approach to Osteoporosis:) did not recommend it to me in my consultation with him.

But if I cannot tolerate Reclast and my doc doesn't prescribe Prolia, I feel like I am running out of options and I will look into strontium risks more deeply. But I were to use it, I would never post gains on this site without a disclaimer!!

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Why does your doctor not prescribe Prolia?

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@rjd

Why does your doctor not prescribe Prolia?

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Because of the rebound, with a drop in bone density and increase in fracture risk when you stop. That's what he said. Of course you can go on Reclast afterward but similar risk with long term effect on bone turnover.

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@windyshores

Because of the rebound, with a drop in bone density and increase in fracture risk when you stop. That's what he said. Of course you can go on Reclast afterward but similar risk with long term effect on bone turnover.

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Interesting position. From my research, I thought you could go on Fosomax or something similar after Prolia to lock in the bone density gains and thereby reduce fracture risk associated with stopping Prolia.

Are you on any meds for osteroporosis and if so, what?

I could try to research this from your other postings but I find this website, as wonderful as it is, to be difficult and time-consuming to navigate. Thanx.

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Strontium is a chemical element/metal. There is so much conflicting info online about what it is exactly and whether it is actually beneficial to the bone. What is definitely known is that it replaces calcium in the bones and that it artificially inflates dexa scores . In a supplement with a very small amount, perhaps it's not an issue?
One of my main concerns with strontium is that it is not a nutrient and our bodies do not *need* strontium whereas they need calcium. Replacing something that is essential to our bodies and bone health with something that is not just doesn't feel right to me. Other side of the coin is that prolia, bisphosphanates, etc. are also not essential to the body! But we all need something to boost our bone density so it's always a tough decision to weigh all of these options and their complexities.
My original doctor for osteoporosis, an expert in her field, strongly recommended against it. She also said that strontium citrate, the supplement form, is totally different from strontium ranelate, the drug option.

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@rjd

Interesting position. From my research, I thought you could go on Fosomax or something similar after Prolia to lock in the bone density gains and thereby reduce fracture risk associated with stopping Prolia.

Are you on any meds for osteroporosis and if so, what?

I could try to research this from your other postings but I find this website, as wonderful as it is, to be difficult and time-consuming to navigate. Thanx.

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I am finishing Tymlos.

I referred to Reclast in my previous post, as a follow up to Prolia. Reclast is, like Fosamax, a bisphosphonate.

Yes you can go to a bisphosphonate to "lock in gains." But long term use of anti-resorptives (Prolia and bisphosphonates) carries risk of atypical femur fractures, dental issues/jaw necrosis etc. So maybe the additive effect of years on Prolia + years on an anti-resorptive are a factor in my doc's approach.

I would ask your doctor about this!

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