← Return to Just diagnosed: Metastatic NETs. Treatment?

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@ahtaylor

Welcome to the NET site! Hope you find the group helpful and supportive. I don’t have your exact diagnosis but do have metastatic insulinomas (which are a type of NET)- pancreas and liver - currently surgery is not an option - I am on octreotide which is similar to Lanreotide. I have been on Lanreotide in the past - unfortunately, I had an allergic reaction and had to stop taking it but was on it for about 8 months. The side effects are not bad, at least for me - more annoying than anything. Some mild nausea and GI side effects. My oncologist gave me a prescription for zofran to have in the event of nausea. I only experienced nausea the first day or 2 and then it would resolve. I wish you the best in you journey! Again, welcome to the group!

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Replies to "Welcome to the NET site! Hope you find the group helpful and supportive. I don’t have..."

Oh that is so good to hear! I'm sorry you had the allergic reaction...is there an alternate drug you can take? That seems so strange to have the reaction after taking it for 8 months, but I've heard of it happening with other drugs. Thanks for easing my mind about the side effects...I have as few as you had. Good luck on your continued treatment, and thanks for the nice welcome!