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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: Oct 13 3:46pm | Replies (312)
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@wncard

I was diagnosed in 2021 with CIDP and ILD after working in hospitals during the pandemic as a certified healthcare chaplain. I get IVIg once a month and pulse steroids. I am devoted to maintaining as much mobility and health as possible. My journey is blessed. I am recovering. My experiences with illness and care for others leads me to offer support to patients struggling to meet their needs. Please write if you have CIDP or another related chronic AI disease and would like to share.

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Replies to "I was diagnosed in 2021 with CIDP and ILD after working in hospitals during the pandemic..."
Becky, Volunteer Mentor | @becsbuddy | Apr 29, 2023

@wncard Welcome to Mayo Clinic Connect! What symptoms led you to the doctor for a diagnosis? Gosh, I have lots of questions about your autoimmune disease, but, maybe instead, you could tell us a little about how CIDP affects you. Would you mind?

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kim1234 | @kim1234 | May 9, 2023

I have had CIDP since 2009 and it has slowly taken over my left hand side of my body.
It has become very active since I had the 2 x covid injections plus the booster.
Both my legs are very painful.....I have just had 5 days in hospital for intravenous solu medrol....
with no improvement...I am seeing my dr this week who will do a further 5 dys......question......
could this activity have been accelerated by the covid injections??????????
What is pulse steroids?

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