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Terrified of what's coming

Caregivers: Dementia | Last Active: Apr 29, 2023 | Replies (25)

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@mariana739

Hi Johnna,
I so understand what you are going through, my husband has just been taking the meds for 2 months and maybe I'm expecting too much too soon but I don't see any improvements. To be honest I don't think they will do much but I guess if they don't cause him negative effects there is nothing to loose right?
He is not at the stage of repeating things or asking the same questions constantly yet, only once in a while.
I, like you, try to find activities that would give a respite out of the house, because he is completely a recluse, no friends, no social life at all.
I also exercise regularly but then I ask myself: what kind of exercise will protect me from the constant stress of living with him?
Anyway, I hear you and yes it sucks big time !!!

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Replies to "Hi Johnna, I so understand what you are going through, my husband has just been taking..."

Nice to hear from you. They say the meds slow it down but I think sometimes I don’t know how much more if this I can do. He isn’t ready for a nursing home. I try to stay positive and go to church. That really helps me too. Keep exercising and take care of you. I don’t dwell on this but not knowing what might come is very scary.

Hi, @mariana739 I read your post with interest. I'm not sure what drugs your husband is on, but I know with my MIL, her doctors told us the meds tend to help her stay on her current plateau and slow some decline for a while. At least the ones she was on were not supposed to 'make her better' or improve her situation, just help retard the inevitable declines.

I agree with you that caregiving is a tough job for sure! Realizing my wife was unable to do the things for herself that she asked of me helped me on those tougher days. It is so difficult to see this darn disease steal so much from our loved ones.

Strength, Courage, & Peace