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multiple meningioma brain tumors

Brain Tumor | Last Active: May 29, 2023 | Replies (127)

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@pegorr

Well, this is just silly. I'm commenting on my own question from 7 yrs. ago. I am doing reasonably well, and as I often say am "mostly normal". I am wondering how everyone else is doing from that time frame. I still have the 4 tumors left, and am still holding off on further surgeries. It seems so risky at this point and worry that 3 might not be my lucky number. I have also been diagnosed with 5 hemangiomas on my spine, yay me. Life can definitely be challenging but it's also wonderful. All my love to all of you. peg

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Replies to "Well, this is just silly. I'm commenting on my own question from 7 yrs. ago. I..."

@pegorr!!! Not silly at all. I'm so glad to get an update from you. I'm confident that your post will reanimate this discussion and we'll get updates from other members new and old like @nancirae @lindajean @barbarabx @kareniowa @lindalb @pennie @elewis @nancye3 @cnesselroad @peej @wegotthis @bomashisha @pennie @morock77 @junebug222 @rose4622 @cindyt63 and others.

Peg, I'm clinging to your statement that are doing reasonably well and are able to often say "mostly normal." What treatment options are being considered for the 5 hemangiomas on the spine?