Well, this is just silly. I'm commenting on my own question from 7 yrs. ago. I am doing reasonably well, and as I often say am "mostly normal". I am wondering how everyone else is doing from that time frame. I still have the 4 tumors left, and am still holding off on further surgeries. It seems so risky at this point and worry that 3 might not be my lucky number. I have also been diagnosed with 5 hemangiomas on my spine, yay me. Life can definitely be challenging but it's also wonderful. All my love to all of you. peg