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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)
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@marid57

I was diagnosed with PMR in January of this year. My prednisone dose has been increased a few times and is now at 20 mg. The problem is that the greater the dose, the worse I feel mentally and with respect to increased fatigue. Has anyone else had this happen?

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Replies to "I was diagnosed with PMR in January of this year. My prednisone dose has been increased..."
marymv | @marymv | May 11, 2023

I was very edgy until I got below 10mg. Best of luck to you!

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lymanola | @lymanola | May 15, 2023

I started on a high dose, 20 mg. The thing I did that my doctor said was unusual and probably helpful was I force myself to exercise every day. For at least an hour, I would kayak, walk, or bicycle. Over the course of 12 months, I tapered off every couple of months by small amounts until I was on just a couple of milligrams. But even at the end, when I was down to about a mg every other day, I did feel a difference when I stopped completely. But it didn’t last more than a day or two. Maybe exercise and tapering little by little?

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