Desperate for Help! Neuropathy related to cancer or hereditary?

You do not mention where you have your pain. Is it in your hands. If it is I have a suggeston for you. I have Raynaud's disease. This causes a compression of the blood vessels to my hands if they become cold. Therefore, it is important to always keep them warm. Gloves of course, but I find that Compression gloves are so much better. I also make some small square bags, fill them with rice and sew them closed Put them in the microwave for 1 minute. They are hot and stay warm for 5 or 10 minutes and they warm my hands. They are great if you are going outl they fit easily into coat or jacket pockets. Hope this helps.
Gina5009

Same boat. I’m looking for answers. Get this…. Original PCP said neuropathy is due to Amyloidosis. Rheumatologist said no. It’s not that. It’s radiation injury from radiation after lumpectomy. Radiation doc said no. Looks like a bone marrow issue. Oncologist said it’s not that! I’m back to now neurologist doing more tests and am going to do the genetic testing. It’s so frustrating!

OMG!!!!! I feel your pain. I hear it in your words. I was diagnosed with sensorimotor Polyneuropathy and small fiber neuropathy. I have tried everything, with really bad side affects. Just today….I went to pain management (1st time) and I was told that it looks like I’ve tried all the go to medications. What they suggested was to lose weight, exercise, get my diabetes under control. Well….my primary Dr. took me off of my diabetic meds because he said I had my A1C under control and I would love to get back to my life….walking three miles a day, chasing and teaching first graders, and driving. So now what????? I am out on disability through work but that only last a year. I’m so stressed out. I’m in extreme pain 24/7. I don’t know where to go to from here. Why won’t drs. listen instead of making us feel like it’s our fault we’re sick and in pain?

Try the Red Light Therapy on Walmart.com. Have tons of devices to choose from. Have been using for 10 days and is helping me with pain, numbness, and blood flow.

I am in the same situation as you. I am trying the red light therapy. There are tons of devices you can order at Walmart.com. Search under red light therapy. I ordered the handheld device. Have been using for 10 days and is helping pain, numbness, and bloodflow. My husband had arthritis in his thumb and knee. He used 2 times and no more pain. Chiropractors are charging 4,000 to 6,000 for their red light sessions!

Hello @vtgvtctclara
I am so sorry that you have such pain!!!! Most of us that are experiencing neuropathy have great empathy for your situation. I have to say that Gabapentin has help me with my pain but I am on a high dosage. Everyone responds to medication differently and you have to find what works for you….. many of us offer advice and what works for us so perhaps you will find something that helps soon. I have also found that anything that contributes to an immunologic episode makes my neuropathy pain worse. If I have a day that I have high sugar intake I truly pay for it. It is very difficult but I try to eat healthy and eat large amounts of fruits and vegetables and protein. I also find that if I over exert myself I pay and have increased pain for days.
You have to find what is right for you. I have also found that physical therapy and exercise also helps decrease my pain. The worst part of my day is at night, pain just seems to be the worst, so I have increased my gabapentin and try to stay hydrated. Please stay in touch and let us know how you are doing. You have great support with this group!
Kim

Thanks! Will check it out