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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: May 9 9:40am | Replies (169)

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@becsbuddy

@jcu As a fellow member, @dustymi11er ,would say, “welcome to another clipperati”! I’m sorry that you’re dealing with this. It’s not fun, but its do-able. And you can do it!!
What speciality of doctor are you seeing? I just worry that you’re not on immunosuppressants, like CellCept or Myfortic. The fact that you’re having trouble walking really means you’re not on adequate drugs.
As for being back to normal in a few months—I’m in year 6. Most people would say that I’m “back to normal”, but . . . . I use a cane when walking and many days I don’t drive and always need a nap.
Can you ask your doctor about the immunosuppressants?

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Replies to "@jcu As a fellow member, @dustymi11er ,would say, “welcome to another clipperati”! I’m sorry that you’re..."

Thank you! My doctor is a neurologist, but I think I am the first case he has delt with. I will definitely bring this up with him. Thank you for the encouragement and sharing., It is so helpful.