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How did your PMR begin?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 18, 2023 | Replies (114)

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@barracudacool

I am not normal, atypical, non classic…..lots of other words like that. My rheumatologist uses these terms to indicate that my PMR symptoms are different than most others. Except they aren’t. Not really. There really isn’t a garden variety PMR and I wish docs would stop looking for one and locking in one set of symptoms as being typical. Like you, My pain is in my thighs and hips. My CPR was at 113. It’s now normal but my SED remains high around 50. I have been on prednisone since December and can’t get below 25mg without a major flare. Methotrexate added but only on it a month so far so not really helping yet. Probably at 3 to 6 months. Doc is ramping it up though and I start doing 25mg of the Metho along with trying to begin again to taper the prednisone down. As many here have said a slow taper is the only way to do it. My next taper is from 25mg to 22.5. I think small, more subtle tapers works best.

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Replies to "I am not normal, atypical, non classic…..lots of other words like that. My rheumatologist uses these..."

Thank you!