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Hopeless and Discouraged, again! Seeking any advice.

Neuropathy | Last Active: May 23, 2023 | Replies (55)

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@annregister

Yes, some days are worse than others and I didn’t say a word to anyone about my pain for two years. I just put a smile on my face, worked everyday, came home and cried myself to sleep. Even my husband didn’t know the extent of my pain. I know people are there to help; I just don’t want to be a burden. However, it came to a point that the pain was so severe 24/7 that I couldn’t hide it anymore. And yes, it has killed me to not drive anymore but what has really destroyed me the most is having to walk away from teaching.

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Replies to "Yes, some days are worse than others and I didn’t say a word to anyone about..."

Same here. I never complained for years about the PN pain. Last April I had spinal reconstructive surgery done (unrelated to PN) which went well but I caught all those infections you never want to catch in a hospital. I ended up staying in the hospital for 8 months. There were days I didn’t think I was coming home. I don’t remember a lot of things that occurred during those 8 months. My wife and daughters talk about what happened but I don’t recall most of it. My wife and daughters were there for me every day so you may want to chat with your husband about your pain. PT and OT are painful but I want to get back to a normal life. We travel a lot and I still have a bunch of places left on my bucket list. And our grandchildren are getting married and having children . So my plan is to see all 9 grandchildren married and meet my great grandchildren. No matter how long that may take. Dream on. Sorry you had to give up teaching. Two of my daughters are teachers and they love what they do. I walked away from engineering at MIT after 33 years because they were downsizing their Oceanography program and I accepted their buyout package. Then I went to work for BAE Systems on Long Island as an engineer for 9 years before retiring for good.