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Hopeless and Discouraged, again! Seeking any advice.

Neuropathy | Last Active: May 23, 2023 | Replies (55)

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@wisco50

I am truly SO sorry you had to deal with that type of behavior you describe. It IS so devastating and depressing to deal with such behavior, especially when you are already feeling frustrated, angry, etc. I had a situation where it took almost ten years from the time I started having a condition that was extremely painful - and invisible to others - saw several medical/dental specialists, had multiple therapies, surgeries, etc. I worked in a hospital and yet still was not believed including by co-workers.
I am hoping you can find some true relief in your near future.

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Replies to "I am truly SO sorry you had to deal with that type of behavior you describe...."

Thank you for your comment and empathy. Throughout my journey of discovery, I have lost faith and trust in the medical establishment. I realize the symptoms are subtle in the beginning, and do progress over time, but it should not take a years diagnose someone with a debilitating illness.

Think doctors have such an ego that they cannot bring themselves to tell somebody “I don’t have a clue what’s wrong with you.” I’ve had some just sit there and shake their head and no words come out and offer no suggestions for next steps.
I’m extremely disappointed and discouraged. With that said, I have not given up, I will keep searching for an answer to relieve my pain and suffering. My list of therapies and doctors and tests are long but I’m willing to try anything to see if it helps.