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Intermittent right side facial swelling

Autoimmune Diseases | Last Active: Nov 17, 2023 | Replies (28)
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@becsbuddy

@lisafabs32 I’m so sorry that you’ve got this syndrome. Do the doctors think it could be autoimmune? Many of us in this support group have diseases with very nebulous symptoms but we’re all treated with prednisone and other drugs. You say you’ve been to a rheumatologist but still no answers.
Do you think this rheumatologist would be willing to do a little research and try some of the autoimmune drugs? Think you could ask him/her?
Will you keep me posted on what you learn?

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Replies to "@lisafabs32 I’m so sorry that you’ve got this syndrome. Do the doctors think it could be..."
lisafabs32 | @lisafabs32 | Apr 27, 2023

Hi Becky,
Thank you I appreciate your reply. Yes, my doctors believe it is autoimmune. I am seeing a new Rheumatologists on Monday as he comes highly recommended - I will see what he has to say and ask if he is willing to to try some of the autoimmune drugs. Thank you for that recommendation and will most definitely let you know.
I am on 3 months of antibiotic per my ENT and I am also on a migraine medication that the neurologist suggested because when my face swells it comes with a head ache. I think the doctors are just all trying different things and medications to see what works but so far the only thing keeping the swelling at bay is prednisone. My last does this round was on Monday and my face is starting to swell up again tonight - I'm so discouraged.
Thank you again for your message Becky - it all helps.

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